Monday, July 4, 2011

Sleeping Beauty

Posted Jun 16, 2011 5:50am

Sarah is sedated and sleeping peacefully for the first time in 2 weeks. It's a starting point. She will go in for her trach, a stomach tube, and her sinus surgery today- most likely this afternoon.

A bit of good news awaited me this morning as I arrived, she has tested negative for RSV. It is a nasty little virus that is often responsible for making kids pretty sick. Grae had it several years ago, and her little playmate was briefly hospitalized for it. If it had come back positive, she would have been off the transplant list until it cleared. There is another CF'er in the ICU awaiting a transplant who does have it, and will have to wait. So we'll rejoice in a small victory.

Sarah would be the first to point out that the other young woman is in worse shape, has a rarer blood type, and her parents have already lost her brother to CF. There is always someone who has a tougher path and it's important to keep that perspective. Sarah is in tough shape, but not without hope.

More later,

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