After another 'good' night, Sarah's eyes were bright this morning. She slept for about 4.5 hours uninterrupted. That is the longest stretch of sleep she has had since she was admitted. I'm exhausted just thinking about that.
We have managed to get some of the worries off her mind, and perhaps sorted with the staff in the ICU. It is so difficult for her, after more than a decade of listening to her body and administering her own care in response at home, to let others be in charge of those actions. Hopefully, those watchful eyes can rest a bit easier.
We talked this morning for a while, and she told me how bone-tired she feels. I think this will be her greatest challenge, as she waits for the new lungs. Not knowing the hours or the days makes it hard to steel yourself for the journey. I think if we can find other benchmarks for her to work towards: a shower, a wheelchair ride, the beautiful view from the waiting room. Having some simple things that will take her mind off each breath for a while would be salve for a different ache.
She asked me to read the postings again last night, so keep them coming. They are a window to her life outside of tubes and traches, and help lift her spirits.